My Lords, I am grateful to the noble Lord, Lord Patel, for tabling these amendments and to the noble Baroness, Lady Sherlock, for moving them in his absence. The amendments allow me to set out the Government’s position on how we will deliver PIP effectively for young disabled people in a way that is sensitive to their needs. Noble Lords may be aware that the Government published a briefing document that specifically considered the position of young people. The briefing document set out some of the main insights that we have learned from them and their representatives, which are informing our design work.
Let me be clear from the outset. I know that there are particular issues and sensitivities when dealing with disabled young adults at what can be a particularly challenging period of their life. That is why we have been working closely with people aged 16 to 24 and their representative organisations in order to understand how we can ensure that the benefit is administered in a way that best meets their needs. Two main considerations that young people have raised with us are: whether 16 is too young an age to begin the process of moving from DLA to PIP; and making sure that the transition arrangements for moving on to the new benefit are easy to understand and transparent—the role of advocates and information needs, for example, being particularly important.
Under current arrangements for DLA, the child-related rules fall away at the age of 16 and the entitlement conditions to the care component are extended. The age of 16 therefore forms a natural touch-point to re-examine entitlement and take young people through to entitlement and receipt of DLA in their own right, where that is appropriate. Paying young people directly gives them direct control over how the benefit can enable them to live independent lives. It is our firm belief that the principle of giving individuals control over how they can tackle the barriers to their independence should be brought forward into PIP.
In developing our proposals for PIP, we know that there are particular issues that we need to address concerning its delivery to young adults. For example, young disabled people can expect to go through a number of assessments as they move from childhood to adulthood, and many of them will require varying degrees of support to negotiate those assessments. That is why we will ensure that all young people who claim, or transition on to, PIP will have the appropriate support to allow them fully to express their needs. This could be, for example, by allowing a parent, advocate or friend to accompany them to their face-to-face consultation.
We are fully involving young disabled people and their representatives as we design and build the delivery mechanisms. For example, we are working with user-led organisations through the PIP implementation development group, which is made up of a wide range of organisations including those that represent young people. We have also begun work with focus groups and have conducted one-to-one interviews directly with young people, appointees and their representatives to inform both the way in which PIP will be delivered and the transition arrangements for those moving from DLA to PIP.
As I mentioned, the transition from childhood to adulthood brings with it numerous assessments at different ages. We are therefore also working across government, in particular with the Department of Education, to see what more we may be able to join up and share information with the proposed single assessment process for education, health and social care. This means, for example, that if an individual is still in education or training, exploring whether we may be able to use evidence from special educational needs assessments or information from the school or college to inform the determination of a PIP claim. But we need to look carefully at this so that we get the right balance between not overassessing someone and having an approach that is too general to identify a person’s specific needs. My officials are therefore working closely with officials in the Department of Education so that we get this right.
To ensure transparency, credibility and a smooth transition from DLA to PIP, we know that we will need to build in processes, with appropriate information and engagement, that let young people and their families know what to expect and understand what they have to do. Our intention is to ensure continuity of payment, with no gap between DLA ending and PIP starting when an individual makes a claim and subject to their meeting the eligibility conditions. We are continuing to consider how the detailed rules should work and, as with all the changes that we are making, we will continue to involve disabled people and their representatives in the design.
Following the findings from our interviews with young people, our intention is to engage early, informing them about the change to PIP before they turn 16. We intend to provide continued support right through the process of reassessment and for new claims after an individual reaches 16. We have set out in our updated policy document how we intend to continue to work closely with the disabled young adults in representative groups to ensure that the processes are flexible to needs and work smoothly and effectively for young people and their families. That document also sets out some principles that we are agreeing with stakeholders, such as early access to support and advocacy and continuous evaluation and improvement of the system, involving young people.
I had five distinct questions from the noble Baroness, Lady Sherlock. Rather than answer them verbally today, the best thing that I can do is write to her and the noble Lord, Lord Patel, addressing all the points in those detailed questions, if that is satisfactory.
In conclusion, I reiterate that we fully understand the concerns that the implementation of PIP may have for disabled young adults. We also know that the key to the success of delivering it to this group is flexibility to meet the varied needs and aspirations of disabled young adults. I am being a bit technical but the amendment as it stands would potentially limit that flexibility by imposing statutory duties that would be less able to respond and react to change, especially as we refine and improve processes as a result of our experiences. I fully acknowledge, however, that this is a probing amendment so we do not need to worry about the niceties of its wording.
I hope that I have been able to describe the approach that we want to adopt. Given the assurances that I have been able to make, I urge the noble Baroness to withdraw the amendment.
Welfare Reform Bill
Proceeding contribution from
Lord Freud
(Conservative)
in the House of Lords on Monday, 21 November 2011.
It occurred during Debate on bills
and
Committee proceeding on Welfare Reform Bill.
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2010-12
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House of Lords Grand Committee
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