I apologise to right hon. and hon. Members for any confusion that my movements around the Chamber may have created earlier, Mr Deputy Speaker.
New clause 45 is about the comparability and interoperability of health data across the UK. I say to the hon. Member for Rhondda (Sir Chris Bryant), the Opposition spokesman, that I have never been called pregnant before—that is a new description—but I will return to his point shortly in these brief remarks. There are three important reasons worth stating why data comparability is important. The first is that it empowers patients. The publication of standardised outcomes gives patients the ability to make informed choices about their treatment and where they may choose to live. Secondly, it strengthens care through better professional decision making. It allows administrators to manage resources and scientists to make interpretations of the data they receive. Thirdly, comparable data strengthens devolution, administration and policy making in the health sector. Transparent and comparable data is essential for that and ensures that we, as politicians, are accountable to voters for the quality of services in our area.
We could have an academic and philosophical discussion about this, but what brings me to table new clause 45 is the state of healthcare in north Wales. We have a health board that has been in special measures for the best part of eight years, and I have to wonder if that would be the case if the scrutiny of it were greater. One of the intentions of devolution was to foster best practice, but in order for that to happen we need comparability, which has not proved to be the case in the health sector.
For example, NHS Scotland does not publish standard referral to treatment times. Where it does, it does not provide averages and percentiles, but rather the proportion of cases meeting Scotland-only targets. In Wales, RTTs are broadly defined as the time spent waiting between a referral for a procedure and getting that procedure. In England, only consultant-led pathways are reported, but in Wales some non-consultant-led pathways are included, such as direct access diagnostics and allied health professional therapies, such as physiotherapy and osteopathy, which inevitably impact waiting times.
On cancer waiting times, England and Scotland have a target of a test within six weeks. However, there are different numbers of tests—eight north and 15 south of the border—and different measures for when the period ends—until the last test is completed in England or until the report is written up in Scotland. Those who understand health matters will make better sense of what those differences mean, but I simply make the observation that there are differences.
In Wales, the way we deal with cancer waiting times is different. Wales starts its 62-day treatment target from the date the first suspicion is raised by any health provider, whereas in England the 62-day target is from the date a specialist receives an urgent GP referral. Furthermore, in Wales routine referrals reprioritised as “urgent, with suspicion of cancer” are considered to be starting a new clock.
What can be done about this and why does it require legislation? New clause 45 may seem familiar to hon. Members because it was first brought forward as an amendment to the Health and Care Bill in 2022. It was withdrawn with the specific intention of giving the Government the time to develop a collaborative framework for sharing data with the devolved Administrations.
I pay tribute to all four Governments, the Office for National Statistics and officials for their work since then.
Notwithstanding that work, on 5 September 2023 Professor Ian Diamond, the UK national statistician, made the following remarks to the Public Administration and Constitutional Affairs Committee about gathering comparative health data across the devolved Administrations:
“You are entirely right that statistics is a devolved responsibility and therefore the data that are collected for administrative purposes in different parts of the United Kingdom differ. We have found it very difficult recently to collect comparable data for different administrations across the UK on the health service, for example.”
On working more closely with the devolved Administrations’ own statistical authorities, he said:
“We have been working very hard to try to get comparable data. Comparable data are possible in some areas but not in others. Trying to get cancer outcomes—”
as I have just referred to—
“is very difficult because they are collected in different ways… While statistics is devolved, I do not have the ability to ensure that all data are collected in a way that is comparable. We work really hard to make comparable data as best as possible, but at the moment I have to be honest that not all data can be compared.”
Mr Deputy Speaker, new clause 45 was brought forward as a constructive proposal. I believe that it is good for the patients, good for the professionals who work on their healthcare, and good for our own accountability. I do not think that this House would be divided on grounds of compassion or common sense. I thank all those Members who have supported my new clause and urge the Government to legislate on this matter. Today was an opportunity for me to discuss the issues involved, but I shall not be moving my new clause.