I agree. During my conversations I find that carers are using annual leave and emergency unpaid leave, when they need to, in order to undertake caring responsibilities, and that sadly—as I will mention later—they are forced out of the workplace because they cannot manage to balance their responsibilities.
I also met the Fife carers support group in St Andrews, a group who call themselves, and I hope the House will forgive my language, the CRAP carers—that stands for compassionate, resourceful and patient. One lady was caring for her grown-up son, who is coping with severe mental health challenges, two were caring for terminally ill parents, and parents and partners with dementia
were being cared for. All were doing so with huge amounts of grit and compassion, and indeed humour—as the name they have chosen shows.
I came away from meeting that group feeling not only uplifted by their love for their family members, but angry because a number of them expressed guilt—guilt that so much of their time is spent dealing with the administration of caring, rather than feeling that they can give their loved ones the care that they need. That care admin includes negotiating with their employers.
I will bring to the House’s attention the experience of one of my constituents in particular. Amanda works full time as well as providing increasing care to her mum and dad. Her dad has chronic obstructive pulmonary disease and her mum, having been forgetful for a few years, is showing clear signs of dementia. Many of us will recognise that path: forgetfulness followed by confusion; denial followed by anger; and frustration as managing day-to-day life slips away. For Amanda, that means setting up appointments and speaking to carers and medical professionals. It means popping in as often as she can to do the shopping, to keep her dad company, to make sure her mum is okay and to be there after nurses leave to manage her mum’s confusion and sometimes even distress.
That is all relatively new and, so far, Amanda’s employer has been supportive. She has taken some last-minute holidays and she has been able to take the odd day off, but she is worried about what comes next. Her mum is not going to get any better. Will her employer stay supportive? What happens if she gets a new manager? Something that struck me in the earlier debate today is that sometimes it is not just about employers, but about managers and line managers, and ensuring that they have the correct information to take the correct decisions.