I thank my hon. Friend for that point. It speaks directly about an issue I am coming on to. Anne has told me that she faced that problem, along with others such as getting a benefits processing centre to understand how the Skipton Fund works and the fact that she and others like her are fatally ill. She would like to see the “passporting” of prescriptions, which connects with what my hon. Friend just said.
My second constituent is a haemophiliac, and he was infected with hepatitis C in 1978 from an operation on arthritis. He realised the result in the 1990s. I am sorry to say that he had been part of Skipton stage 1 until last year, but he was then diagnosed with cirrhosis of the liver, which he had feared for many years. He, too, has been treated with interferon, a “truly awful drug”, and he is hoping for a new generation of drugs in a couple of years’ time.
My constituent has lived in fear of his disease worsening and of passing it on inadvertently to his wife and children. At first, he was told
“not to worry, as Hep C was like flu”.
He explained:
“Later they said that was wrong and it would probably kill him one day—unless…something else got him first.”
He told me:
“It’s funny how as you clock on a bit you get told you don’t need to worry as something else will kill you first. One does begin to fear this thing that’s going to get you first!”
He has been angered by the distinction drawn between stages 1 and 2 of hepatitis C in the lingo of the fund. The APPG’s report backs his view, and indeed my other constituent, Anne, agrees in the sense that many sufferers sadly progress from stage 1 to stage 2.
My second constituent would like three things: a full judicial inquiry; improved administration by the Skipton Fund; and better compensation, which he believes to be poor for the death and suffering caused in comparison with payments that other victims of other tragedies have received. He is hugely cynical that any Government will do something about this “hidden scandal”, which, as he calmly says,
“is a great pity for an awful lot of people.”
Let me come to my own views. I think the APPG’s report is a strong piece of work which holds many sensible recommendations that I would back. As I said, I would back the holding of a public inquiry, as this is one of the last remaining great scandals for which culpability ought to be clear, acknowledged and apologised for. I back the motion and pay tribute to my right hon. Friend the Member for North East Bedfordshire (Alistair Burt) and all the others who have made today possible.
I add one comparison drawn from Anne’s comments, and this speaks to what my hon. Friend the Member for Worthing West (Sir Peter Bottomley) challenged me on.