UK Parliament / Open data

Health and Social Care Bill

Perhaps the noble Lord could comment on one specific point. In my experience, the biggest problem in respect of these rare diseases is not providing the services—although that can be a problem—but the fact that they are not identified in the first place because no doctor has ever seen one before. Identification is at least as big a problem as treatment but that is not addressed in this amendment.
Type
Proceeding contribution
Reference
735 c1319 
Session
2010-12
Chamber / Committee
House of Lords chamber
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