Health Bill [HL]

Amendment 133 133: After Clause 32, insert the following new Clause— "Committee to advise on treatment of haemophilia (1) The Secretary of State shall by regulations establish a Committee to advise on the treatment of haemophilia in the United Kingdom. (2) The Committee shall in particular provide advice on— (a) the selection, procurement and delivery of available therapies for haemophilia patients; (b) patients accessibility to treatments for haemophilia or any conditions which arise from consequent haemophilia therapy; (c) the financial and other needs of haemophilia patients. (3) The membership of the Committee shall include— (a) specialist haemophilia clinicians; (b) representatives from the Haemophilia Society; (c) representatives from the Department of Health; (d) representatives of haemophilia patients, through nomination by the Haemophilia Society and other bodies working to support the haemophilia community. (4) The Secretary of State shall consult the Committee before making substantial changes in policy regarding the treatment of haemophilia patients and before introducing legislation which affects them. (5) Regulations made by the Secretary of State under this section are— (a) to be made by statutory instrument, and (b) subject to annulment in pursuance of a resolution of either House of Parliament."