I congratulate my hon. Friend the Member for Tiverton and Honiton (Angela Browning), who has worked tirelessly throughout her time in Parliament to introduce measures to support children and adults with autism. Parliament, and Members of Parliament, attract a lot of criticism these days, but the kind of work that she has done is a shining example of what still can be done by this place to improve the lives of others.
I also congratulate the National Autistic Society on all its work, and the many other charities that are involved in this area. The "I Exist" campaign is one of many that has contributed significantly to raising awareness and achieving some of the changes that are needed. Of course, I also congratulate my hon. Friend the Member for Chesham and Amersham (Mrs. Gillan) on introducing the Bill. I know how hard she has worked, into the small hours, preparing for today and gathering the cross-party support that we have seen.
Autism is different, because there is no other condition of such complexity that affects so many, and about which so little is still known. We have heard many statistics today, but one of the most striking was the figure of 2 million. It referred to the 2 million people who are affected by autism, including the parents, the siblings, the carers and the families. No one who is unaffected can truly understand what these people's lives are like: the wide yawning gap they fall through between learning disability and mental health when autism is neither of these. For some parents caring for children with autism, there are no holidays and no time off—just 24-hour care every day of every week. This private Member's Bill provides an opportunity to make that better.
Shortly after I was elected, I met some parent carers locally who were looking after children with profound disabilities. They felt angry and let down and were utterly exhausted. With the help of Carers Support Guildford and Carers Support Waverley—I pay tribute to their work—we set up a group locally. Carers Support was fantastic; it had an open day last year and intends to repeat it. It provides an opportunity for parents to drop in and meet some of the local charities and statutory services, attend workshops and meet other parents. Not all these parents have children with autism, but many do. Despite the best efforts of charitable and statutory services, many are isolated, lonely and struggling on their own.
The Bill would change all that. It would combat the lack of information about children and young people with autism. It would give local agencies obligations to include their needs when they plan their services. It would ensure that services around transition—a crucial area as children move towards adult-focused provision—are maintained seamlessly. For young people—and not just those with autism—this period is a trap door through which many fall, as hon. Members have mentioned today. The Bill would ensure that the needs of adults with autism were truly recognised. In a word, it would give people—children and adults—a chance for a good quality of life: the physical and mental well-being that most of us take for granted.
I would like to highlight a few important issues for the Minister. The section 7 agreements, much debated today, have not worked for people with Asperger's. The 2006 Department of Health guidance requires local authorities to nominate a strategic lead or team on autism, but only 39 per cent. have done so—in other words, more than half have failed to do so. The costs due to loss of income from employment and the direct costs to families are estimated at £27.5 billion, as my hon. Friend the Member for Chesham and Amersham mentioned.
Another statistic to pick up is that, because of the lack of support, a third of adults with autism suffer from severe mental health problems. My hon. Friend the Member for Tiverton and Honiton referred to the 8 per cent. who commit suicide. If we drill down into the repercussions, they are truly dreadful. People with autism not only lack support, but suffer from mental health problems—severe mental health problems—on top. We then need to turn our attention to the fact that people with mental health problems have significantly worse physical health. What this third of adults lacking support face is a spiral of deteriorating mental and physical health, dreadful misery, hardship, loneliness, poverty and isolation, sometimes ending in suicide.
I pay tribute to the hon. Member for Burton (Mrs. Dean) and the all-party parliamentary group. I hope that she will decide to support, not block, this Bill. She failed to explain in her interventions why she objects to the Bill going into Committee. The bottom line is that it will be on the record and easy to see who wanted the Government commitments examined with the Bill as a vehicle and who blocked the Bill and walked away from scrutiny of the Government.
The hon. Member for Mid-Dorset and North Poole (Annette Brooke) covered many points and the hon. Member for South Thanet (Dr. Ladyman) raised the interaction between people with autism and the police, pointing out that the Bill fell short in some ways. I think that my hon. Friend the Member for Chesham and Amersham accepts that, but this is precisely the point. The Committee stage would offer all of us the opportunity to work through the detail and add and subtract in order to get the very best possible services. A Committee stage could only add to services. It would take nothing away. There really is no downside.
Autism Bill
Proceeding contribution from
Anne Milton
(Conservative)
in the House of Commons on Friday, 27 February 2009.
It occurred during Debate on bills on Autism Bill.
Type
Proceeding contribution
Reference
488 c520-1 
Session
2008-09
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House of Commons chamber
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2024-04-21 09:51:09 +0100
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