UK Parliament / Open data

Autism Bill

Proceeding contribution from Annette Brooke (Liberal Democrat) in the House of Commons on Friday, 27 February 2009. It occurred during Debate on bills on Autism Bill.
I thank my hon. Friend for that intervention. Our party agrees that we need that legislative framework. Let me move on to adults, because I want to reflect on a few comments made by the Dorset adult Asperger's support group. It has only recently been set up, but it reflects the problems of such adults very well. Each individual family has different needs. Asperger's is an unseen condition in which there is no noticeable physical disability and it is mostly not recognised or acknowledged, not even by professionals such as social workers and GPs. The individual has a personality that does not fit in with the norm, with odd behaviour and obsessions, and often has an acceptable IQ that does not come under the definition of special needs, which means that they can fall through the gap between social services and mental health services. These adults can have depression and more extreme psychiatric conditions, and so they need to be seen by the mental health teams. Many live a normal life and can hold a job, but others are employable in a limited way and others are completely unemployable and struggle to fill their days. That can be a great strain on all concerned. I have another local example that I want to mention. A young man got a job collecting trolleys at a supermarket, but he did not react very well to females. On one occasion, a lady customer asked him to move the trolley and he responded with very strong language, as one might imagine. There was a real lack of understanding from everybody. That example shows the support we need to offer: additional job coaching, teaching people how to deal with social gaffes and work with employers. We need to try to fill the social skills deficit. The big problem is that many of those people fall between NHS and social service departments, particularly in the case of those with Asperger's. The support group also said that those adults and their parents struggle with behavioural problems. Those adults need independence but are unable to be independent. There is a lack of suitable housing, and those with Asperger's are often unable to claim benefits as many have difficulty in getting a proper diagnosis. What is offered to them is, as I have said, a Cinderella service. Indeed, the new criteria will make claiming the disability living allowance difficult for some of those people. They can also be socially isolated through the lack of facilities that can offer a professional approach and understanding. Once a youngster leaves full-time education, they are on their own. Parents have already gone through years finding the right place in education, often not succeeding, and, sadly, the fight goes on for parents until they die. That sums up some of the problems of parents who support adults with autism. I want to congratulate the Wessex Autistic Society, which is an important organisation that provides valuable services in Dorset. I also want to highlight the importance of the voluntary sector. I have a special mission in that I feel that adults with autism need a key worker. I hope that the details of the Bill will reveal that such provision will be made, because I find that in constituency cases my office can become the key worker if I am not careful. It is absolutely essential to have a key worker when an adult is not claiming benefits, is building up debts and needs health and social services support. Somebody has to take ownership of that.
Type
Proceeding contribution
Reference
488 c503-4 
Session
2008-09
Chamber / Committee
House of Commons chamber
Legislation
Autism Bill 2008-09
Back to top