I would to make just a little progress, but I promise that I will give way to the hon. Gentleman later.
Autism is a lifelong and disabling condition that affects how a person communicates, and how they relate to and make sense of the world. It is a spectrum disorder that presents in different ways and to varying degrees in each individual. Some people with autism are able to live independent and fulfilling lives with very little support, while others need specialist support throughout their lives. Estimates suggest that one in 100 people has autism, which means that well over 500,000 in the UK have it. It also means that, together with their families, more than 2 million people are affected by autism every day. There are also suggestions that the prevalence of autism is on the increase.
Autism is a relatively recent diagnosis that was recognised only after world war two. Indeed, Asperger's syndrome became part of international diagnostics manuals only in 1994. That may go some way towards explaining the low public understanding of autism, because although there is a high public recognition of autism and the fact that it is a disability, there is a host of myths and misconceptions about it. One of the most common is that autism affects only children, but one recent estimate put the number of adults with autism at well over 300,000. Often the interest in autism concerns its negative impact and burdens, but there are positive aspects, such as the outstanding talents, which have been considered far less often than the negative impacts. Professor Uta Frith tells me that about 10 per cent. of individuals exhibit special talents, mainly in art, music and memory. Many people also continue to believe, wrongly, that there is a cure for autism.
What is life like for children with autism? A recent report by the National Autistic Society found that 40 per cent. of children with autism had been bullied, while 27 per cent. had been excluded from school, 42 per cent. reported that they had no friends and 70 per cent. had an accompanying psychiatric condition. The NAS estimates that 63 per cent. of adults with autism do not receive enough support, while 82 per cent. of parents or carers of an autistic child say that their child needs some daily support to live independently.
Nine out of 10 parents are worried about their child's future, at a stage when they are no longer able to support them. That leads to grief and pain for all involved. One parent said about her daughter:""She has quite calmly said that when we die, she plans to kill herself because she knows she will be completely alone and unable to care for herself. She weeps on a daily basis because she is so scared of the future. There is nobody to help her manage her daily life, and more importantly, who will love her when we're gone?""
Only 15 per cent. of adults with autism are in full-time work and 75 per cent. either do not have any friends or find it very hard to make friends. More than half of adults with autism have also been bullied or harassed as adults. The more I have learned about autism, the more I have come to realise that not enough is known about it. I have also seen that not enough is being done about the needs of these individuals.
Most local authorities currently do not fulfil their obligations to people with autism. They fail them. According to current Department of Health guidance, local authorities should already be working to assess the needs of adults with autism. However, that is frequently not the reality on the ground.
Autism Bill
Proceeding contribution from
Cheryl Gillan
(Conservative)
in the House of Commons on Friday, 27 February 2009.
It occurred during Debate on bills on Autism Bill.
Type
Proceeding contribution
Reference
488 c486-7 
Session
2008-09
Chamber / Committee
House of Commons chamber
Subjects
Librarians' tools
Timestamp
2024-04-21 09:49:50 +0100
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