UK Parliament / Open data

Human Fertilisation and Embryology Bill [Lords]

I am grateful for that intervention because it is the issue of definition that concerns me. Amendment No. 25 sets out an extension to harmful genotypes. I have looked up the meaning of genotype, and it includes a range of definitions of the genetic make-up of an individual. Genotype can also be defined as the physical or psychological genetic potential of a person when born—for example, someone born with a genetic predisposition with depression. However, whether that person develops depression depends on their upbringing and environment. I looked further at the definition of genotype, and it is defined as one's genetic potential when born, physically and psychologically. Someone may be born with the physical genotype to play football for his or her country. One would have to judge whether it would be a harmful genotype that led someone to play football for England, Scotland or Wales. One certainly would not want to include a definition of genotype in relation to this area of the law. I wish to press amendment No. 4 to a Division because it raises important issues of principle that I do not believe are met by safeguards, which we shall debate later. The safeguards are helpful to the debate, and they have been discussed in detail in the other place. Nevertheless, it is important for this House to decide for the first time on the principle of saviour siblings. Indeed, that is one of the reasons we are discussing the matter in a Committee of the whole House. It is an important issue of principle. I listened carefully to the right hon. Member for Knowsley, North and Sefton, East (Mr. Howarth), for whom I have great respect. It is certainly important that we do not simply consider the matter in some vacuum of principle away from the application of the real issues of anguish that have been mentioned—the cases we have heard that, for the avoidance of repetition, I will not go over in detail. The whole House shares considerable concern for those parents caring for a seriously ill child, and understands their desperate search for a cure. After they have been through all avenues to seek a match—from bone marrow or any available cord blood—and are told of an opportunity to create a sibling to provide a match, one can understand why they would want to consider that option. It is important that we take account of those concerns and recognise that they are rare concerns. I heard clearly the Government's response on Second Reading that the measure is one of last resort, but it is important that the House deals carefully with the ethical principles involved.
Type
Proceeding contribution
Reference
476 c92-3 
Session
2007-08
Chamber / Committee
House of Commons chamber
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