On Friday, I met Mr. and Mrs. John Burrell of Godshill, who came to my advice centre with a matter of the utmost concern. The Burrells have been married for 41 years and the family has lived on the Isle of Wight for five years. Sadly, Mr. Burrell was taken ill two years ago, or thereabouts, with renal cancer. His life may be prolonged by use of the drug Sutent. Although Sutent has not yet been approved by the National Institute for Health and Clinical Excellence, it is prescribed in many PCTs—but not on the island. Across the Solent, in Portsmouth and Southampton, and in 60 other primary care trusts up and down the country, Sutent would be prescribed for Mr. Burrell or those like him. There appears to be a real difference between PCTs in terms of treatment available. Some, such as the Isle of Wight, are inflexible and others are more flexible and appear to consider whether use of the drug is appropriate.
The estimated cost for the initial treatment is between £4,000 and £7,000. The number of people on the Isle of Wight who may benefit from Sutent is as low as just two cases in two years, including that of Mr. Burrell. Mr. Burrell has been supported by Dr. Gabi Fritzsche, his general practitioner of Niton, and Dr. Kudingila Madhava, his consultant oncologist based at St Mary's hospital in Portsmouth. Let me quote a letter sent by Dr. Madhava to the PCT, as reported in a front page article in the Isle of Wight County Press. Dr Madhava said:"““As Mr. Burrell is a young patient and has been very fit until recently, he would really be an ideal candidate for this treatment. It would be unfortunate if you deprived him of this newer drug just because of lack of funding.””"
But despite that plea, Mr. Burrell was rejected for Sutent by the Isle of Wight PCT—a decision confirmed by an appeal panel last week.
Dr. Jenifer Smith, director of public health for the Isle of Wight PCT, said, and I quote:"““Our standard practice for new drugs is to use only those which have been approved by NICE. We believe this policy is in the wider best interests of all our patients, and the public, as it ensures we prescribe medicines which are safe, effective and value for money.””"
In other words, its officers simply give effect to a national policy, whereas other PCTs consider the suitability of the drug for local patients.
The NICE policy makes it clear that local decisions are okay for medicines that have not yet been approved for national schemes, yet that does not seem to be happening on the Isle of Wight. Southampton city and Portsmouth city teaching PCTs confirm that they prescribe Sutent, judging each request on its merits, while the north-east strategic health authority approves it as the routine first and second treatment for 12 trusts. To take Dr. Madhava's words into account, it is hard to see what argument for giving the treatment to Mr. Burrell could be more compelling. The only conclusion can be that a postcode lottery is affecting the island, to the great detriment of my constituents and their families. Furthermore, NICE is delaying approval in many cases. If no scheme is approved nationally, there is a stalemate when local approval does not come through.
Mr. Burrell is in an impossible situation. One cannot fail to be moved by his plight. I should be grateful if the Deputy Leader of the House could raise the case with the Minister concerned and ensure that an explanation for this state of affairs is provided for Mr. Burrell and his family. Ministers must also ensure that NICE evaluates new and apparently effective drugs swiftly, so that all patients can benefit from them.
Christmas Adjournment
Proceeding contribution from
Andrew Turner
(Conservative)
in the House of Commons on Tuesday, 18 December 2007.
It occurred during Adjournment debate on Christmas Adjournment.
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Proceeding contribution
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469 c760-1;469 c758-9 
Session
2007-08
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